Team Sparring in aid of INAD Infantile Neuroaxonal Dystrophy
Friday 29th September 6pm onwards….
Please try to support this event for this extremely worthwhile charity. This is a charity that is close to home as one of our women has two children who has this condition.
No one, especially no child, should suffer from a fatal disease that destroys their brain and nerves. Infantile Neuroaxonal Dystrophy (INAD)/PLA2G6-associated neurodegeneration (PLAN) is one of those diseases. It is rare, genetic and devastating.
The symptoms are similar to diseases such as ALS, Alzheimer’s, & Parkinson’s, but it affects very young children and currently there are no treatments and no cure.
Most children with INAD are born healthy and develop typically for the first 6-18 months. Then they begin to lose previously acquired skills, mental and physical abilities. Eventually, they can no longer eat, drink, sit, or breathe on their own. Children with INAD rarely live longer than five to ten years.
A clinical gene therapy trial is currently the best hope for children afflicted with INAD/PLAN. http://Inadcure.org
Interclub Birmingham 1st October
If you are Intermediate and above and you would like to do this interclub then please put your name and number on the list outside gents changing room or text Trix 07743596420.
MTGP Promotion 14.10.2023
Don’t miss the next big event for WickerCamp; James Ogden fighting for a World Title. Tickets on sale from reception.
